Por Francesc Palau, jefe del Servicio de Medicina Genética y Molecular, Director of Instituto Pediátrico de Enfermedades Raras (IPER) del Sant Joan de Déu de Barcelona Hospital. Researcher CIBERER and Coordinator of the Rare Nursing Strategy of the National Health System.
Have a month ago the opportunity to participate in the work of the multidisciplinary group of experts designated by the Roche Foundation which has developed a ‘Proposal for recommendations for the digital transformation of the sanitary system for the incorporation of the Personalized Medicine of Precision’. This document, the result of a collaboration between specialists in different disciplines, has allowed to make 50 recommendations in five key areas for the digital transformation of our health care system, irreplaceable for our countries.
When we transform digital transformation we refer to an integrated and integrated information process, management and research based on technological and elaborate data, which will look for a model based on the generation of knowledge and the result medicine for the value appreciation. Definitely, the digital transformation of conoce fronts in sectors, offers much more than experiences, allows the promotion of changes, advances, majorities. It is important to introduce a national-level pact that favors the Personalized Medicine to target all individuals with precision and public-private collaboration through an essential and dynamic paper. It is the present, but, above all, it is the future of the central public health in the person.
A cultural transformation
And this transformation does not only involve the inversion and renovation of technological equipment that can be implemented, but that, in the background, what we have is a cultural and structural transformation that allows us to focus on the basics of a new model of transition. sanitary and social attention, in that the training of the sanitary professionals and the government, regulation and legislation, and ethical action related as much as the digital infrastructures, innovators, interconnected and worth it for the patient.
Es decir, we guarantee a good management of the date, emphasizing the incorporation of all available health information of the patient in the History of Clinical Electronics; to meet with collaborative staff between professionals and health services; to ensure that assistance and investigation are aligned and advances in conjunction; of professionals in knowledge of data incorporated into the National System of Health definitiv Definitely, of a cultural and organizational change directed to increase the operational efficiency and the management and the median health systems agreed governing, communication policies and a financial program.
Porque we can assume that this analysis is presented at a key moment for our country, in that the European Recovery Funds (NextGenerationEU) can have a useful and concrete application in this field. If we do not lose the train of Personalized Medicine, we will abort without further ado this digital transformation that, no doubt, will be reduced in major benefits for the individual patient and for the system in its conjunction.